It was exactly 6 months after the diagnosis that I did what I feared I could never do again – I led a movement workshop. I led my Molten Motion Workshop with slow, sensual, feminine movement. Yes, I did it. I can lead movement classes, even with a diagnosis of Early Onset Parkinson’s Disease.
It felt juicy good all over to share life lessons, lead conversations, introduce new, sensual movement, and connect in community. It was my pleasure. In fact, leading workshops is one of those activities that make me feel truly alive. I am grateful.
It was the day after the workshop, that I realized it had been six months since the Parkinson’s diagnosis. When I learned about having Parkinson’s, one of the thoughts in my head was:
‘What the FUCK is the universe trying to teach me? I used to teach smooth, slow, feminine dance. How can I ever do that again with a shaking body?’
Back then, I didn’t know if I wanted to teach again, but I really didn’t like the option being taken away from me. I was surprised and concerned upon hearing the diagnosis.
Since then, I continue to wrap my head around what this all means to me. I think the first two months were denial. The next two months were an emotional roller coaster. Now, I’m . . . . settling in with it. I don’t want to say I’m fighting it because I don’t want to fight anything. I choose to come from a place of love, and research how I may release this extra vibrational energy.
I’m aware of the incredible power in how we choose to think. I choose to love my body exactly where it’s at. Here are a few of my body loving ways:
- I show up to hot power yoga classes with love and gratitude for what my body can do today. I work extra hard on the balancing poses. I pet my shaking body part sometimes and send love and light.
- I say affirmations – “I create dopamine with ease and grace” (Parkinson’s is when your body is unable to create the necessary amounts of dopamine).
- I visualize my brain creating the dopamine in beautiful, lively, vibrant colors.
- I choose not to do a lot of research on Parkinson’s because, honestly, it’s scary. I’d like to create my own story of shaking minimally (or not at all) and being healthy, fit, capable, and independent for a very, very long time.
To be perfectly honest, this diagnosis has given me a new start on life. I’ve been living like a hermit for a couple years; working from home, not exercising, not very social, and being a Crank Monster (can you relate?).
I desire to be authentic, playful, and vibrant during this life I’ve been gifted. I desire to be fully expressed. I desire to share. I desire to write again. Please read as I share . . .
I’m strong 90% of the time, and I get a little messy the other 10% of the time. How do you, or would you react to a degenerative disease diagnosis? Please share from your heart. I thank you.
I had no idea what you were going through! I have chronic disease but not degenerative. I have watched people I love deal with with MS. I think you are an amazing person and I admire the strength you have found. I meditate and pray every day- I’ll send some healing prayers your way. When my Dads kidneys failed and he started dialysis ; we came to accept the new normal of our lives. I think body acceptance is key and you already have that.
Joni! How brave of you to share this! It must be a difficult journey. I, for one, would only be concerned with your well being as a class leader with Parkinson symptoms, but as long as you were going to be OK- I really wouldn’t care if my otherwise amazing teacher had a little extra shake in her moves. I realize that’s not the only concern you may have, but I’m just saying that as supportive and wonderful as you have always been to your students I think we can give you back an ounce of that goodness in acceptance of things you can’t even control. I would LOVE to take a class with you again. Best wishes to you, a great big hip roll and hug, and all my love!
You are awesome! Welcome back and continue to grow! Keep sending light and love and we will keep sending it back to you!
Hi Joni, I have degenerative disc disease in my back and neck and my magnetic and infrared energy products Greatly Help. I believe they would also help you. I also make sure I take High Quality Nutritional supplements to keep my nutritional status Up and keep my body better able to fight disease. Always Think Positive! and do call to chat. 203-758-9858
Joni You are truly an inspiration. I don’t know how I would handle such a diagnosis. I would look to you for all of your positive energy and love!! That’s a such great advice, not only for someone living with physical obstacles. But for anyone who is not living a good quality of life. Physical,mental, family, money any problem we may have it is so important to remember to live in the moment!! Do what makes us happy. Soak up all the good that we take for granted. Love you my friend, be well <3 (yoga is my favorite)
You’ve always been one to show and share the love, it just beams out of you, and I say this as someone who has been in your company only a few times. I am encouraged by you and this new twist in your life’s adventure story. Stay well and balanced and growing and giving, it looks great on you. Lots of love and support and sending beams of bodacious light your way!
Truly inspiring! Joni I always knew you were a wonderful and amazing woman-and you continue to prove it. I’ll be sending you lots of love and light.
I would be angry and scared and probably blame my Mother! All kidding aside, I often ask people “what would you do if you were me” and I always get a more interesting response when a person has to actually visualize being in your shoes.
That said, you’re an anomaly. Your authentic love of self, along with the comfortable, healthy relationship you have with your body is a gift. Never give up the ability to empower other women. We don’t get enough of it. I admire while you inspire with your philosophy of positive thought and your body loving ways.
What ales me is different from what ales you, but I know that for me, giving up the fight, acceptance, choosing love, sharing, writing, yoga, meditation, my family and the power of prayer get me through it all “one day at a time”.
Keep writing J Lowe!
Joni, Steve saw your post on FB, we didn’t know. It runs in my family and am aware of its effects, much has come out recently that helps. Mental attitude counts for much. Wish we lived close again, my life’s forever enriched through knowing you. Miss you and hope to come up this summer. Like your visualizations of the energy. Sure that your physical and internal work will help you continue to welcome & embrace life and enrich all around you. With love.
Joni, I’ll keep sending you love, prayers and light. You have enriched my life and those of so many women.
Hi Barb. Thanks for sharing. Yes, I have a new norm . . .
Thank you for your healing prayers.
I am grateful our paths have crossed.
Shimmy, shimmy, shake, shake
Hi Wendy. I LOVED seeing ‘Wonder Wendy’ on my comment list. You are wonderful.
Thank you for your heartfelt response. It feels delicious.
We will hip roll together again some time . . .
Thank you for your support.
Hi Julie. Thank you for your message. I’ll call you in a few days . . .
I’m glad you are well supported by your energy products.
Hi Debbie. What a sweet surprise to hear from you. Thank you for your sweet kind words.
Yes, I’m living in the moment, and doing my best to prolong this level of health for as long as possible.
I’ll see you out soon. . . .
Hi Diane. Thank for expressing. I am grateful.
I love your choice of words – ‘new twist in your life’s adventure story’. That’s perfection.
Sending lots of bodacious light right back at you Beauty.
How GREAT to hear from you. Thank you for reaching out.
Thank you for sharing your thoughts. I love that about you. Your first comment about your mom is so easy to relate to.
You know what? You are part of the source that led me to write again, publish, and post. I thank you for that. You’re an inspiration.
Life has its challenges, huh? It’s OK. I’m doing really well.
Thank you for sharing your sweet thoughts. We’d love to see you when you come up. Let me know.
You’re so sweet.
It’s truly my pleasure to enrich the lives of others. I am grateful I do.
Wow Joni…I admire your vulnerability sharing your heart here. I always loved seeing you celebrate dancing at SWA and wish I could come dance with you! You’re beautiful spirit outshines any diagnosis…I believe in you!
Lots of love and good vibes coming your way!! xoxo
Joni, you are SUCH an inspiration with the way you’ve chosen to relate to your body. This is something all patients need to hear, and all women will benefit from.
There are so many ways we’ve been conditioned to reject our bodies and reject our experiences. Seeing you go through this the way you are is so inspiring and will create a shift on the planet so that we all can embrace ourselves in deeper ways.
Thank you for sharing. I haven’t heard from you for a while and had no idea what you have been going through. Thank you for sharing and you are now in my prayers and thoughts. I think the way you are handling is great. Embracing instead of fighting. Visualizing what you need and want. You have emerged stronger and more vibrant.
Sending healing and loving hugs
Thank you for updating us on your journey. To be
Honest, I’ve always experienced you as a person full of light. I came to your studio, confused about my place in my own life. Through your class I gained ownership of my body, with all it quirks. I appreciate that though knowing you you always offer a lesson about being aware that life, with all it’s
Challenges is a blessing and the vessel we have to engage it, needs
our love as it struggles to support us.
Thanks for the lessons.
Dearest Olga, I have goose bumps. Thank you for expressing. . . .
It is truly my pleasure to share the lessons.
Thank you for your healing and loving hugs. They feel tremendous.
I’ll see you Thursday night.
Thanks so much for your sweet, super bright support.
You rock sista’.
It’s good to hear from you. Sorry to hear about your diagnosis. I’m glad my blog post touched you in such a sweet way. It feels deliciously decadent to have an impact on people’s lives.
Feel free to reach out to me at any time. Direct message me.
Thanks for sharing.
Hi Lucille. It’s good to hear from you.
Sorry to hear about your T-cell lymphoma. Be well.
Hi Patti. It is perfection that I hear from you. I was just thinking of you the other day.
Thank you for your sweet kind loving response.
Stay in touch.